Current Beneficiaries

Beneficiaries

 

Morriston Hospital Renal (Nephrology) Unit

The Nephrology Service within ABMU Health Board is based within Morriston Hospital and has responsibility for the care of patients with kidney disease living anywhere in south west Wales from Fishguard and Bridgend in the south, to Towyn and Llanidloes in the North.

It receives referrals from general practitioners throughout this large geographical area as well as from clinicians based in 7 District General Hospital’s (Aberystwyth; Baglan; Bridgend; Carmarthen; Haverfordwest; Llanelli; Singleton).

As well as a haemodialysis unit in Morriston Hospital which dialyses over 220 patients, it is clinically responsible for satellite haemodialysis units which dialyse over 140 patients in Aberystwyth, Carmarthen and Haverfordwest.

There is a sizeable community support service with approximately 100 peritoneal dialysis & home haemodialysis patients and 600 pre-dialysis patients, which works out of Morriston Hospital and extends throughout the catchment area.

Outreach general nephrology clinics are held in 6 of the 7 referring District General Hospital’s (exception being Singleton Hospital).  Patients with renal transplants and potential renal transplant donors are also seen in clinics in Morriston.

The department provides renal replacement therapy for approximately 200 patients annually, with Acute Kidney Injury in the cardiac, burns and general intensive care units in Morriston Hospital as well giving consultative advice in ITU’s elsewhere in south west Wales.

In contrast to the majority of hospital services, managing a ‘Renal Medicine’ service is driven by prevalence (of Established Renal Failure) rather than incidence of disease. National figures show an annual increase of approx 8% in the number of patients requiring chronic haemodialysis (HD).  Referral patterns for patients with chronic kidney disease have changed markedly during recent years consequent on eGFR and general practitioner Quality Outcome Frameworks.

For further information:
http://www.wales.nhs.uk/sitesplus/863/page/39304

Welsh Kidney Patients Association (WKPA)

Welsh Kidney Patients’ Association (WKPA) is an independent registered charity, which is dependent on donations, gifts or grants.

It is the patients’ own organization, covering the whole of Wales, with more than 2,000 members. It is run by patients and carers for patients and carers. The WKPA has been an all-volunteer group since 1982 and a registered charity since 1995. The charity is administered by its honorary officers and a management committee, who are trustees of the charity. They are elected annually at the Annual General Meeting held in October. Membership is FREE and open to all pre-dialysis, dialysis and kidney transplant patients and their carers. We are affiliated to the National Kidney Federation (NKF), which represents kidney patients throughout the UK. This allows WKPA members to receive the NKF’s FREE quarterly magazine “Kidney Life”. The NKF also provides a comprehensive selection of patient information leaflets. The Association encourages setting-up local self-help/ support groups for patients, their families and friends to share information and experiences.

There is also a Befriender Service available at UHW, Cardiff and Morriston Hospital, Swansea, for patients in need of support.

The WKPA publishes a FREE quarterly magazine – “Kidney Matters Wales” which informs patients of current and new developments in their treatment and levels of care. It also includes notices of forthcoming events.
The Association supports the Welsh Transplant Team, to compete at the British Transplant Games.

The Association has undertaken research of patient opinions through patient surveys, providing Service Providers with patient information on the level of care.

They provide modest financial support through our Welfare Fund, for those patients who have trouble in meeting one-off expenditure relating to their treatment, which cannot be met by any other means.

The Association liaises with Hospital Dialysis Units, the Transplant Unit and other support services.

The Association represents kidney patients on the Welsh Renal Clinical Network; and the Cross-Party Kidney Group of the Welsh Assembly.

For further information
http://www.wkpa.org.uk/aboutus.html

 

Children’s Kidney Centre – Heath Hospital

Kidney disease and renal failure predominantly affect individuals during their later years. However, there is still a significant number of young children and teenagers who have to cope with the reality of kidney disease and renal failure on a daily basis.

The Children’s Kidney Centre at the University Hospital of Wales, Cardiff is a central part of the work of Kidney Wales and its ongoing commitment to support patients of all ages.

The Centre’s main function is inpatient and outpatient care. They also work very closely with the team at the Bristol Children’s Hospital to support post-transplant care. Children who undergo surgery in Bristol usually stay in hospital for about two weeks following the operation. The Kidney Wales Children’s Centre provides them with pre- transplant education and following the operation patients visit the Centre’s out-patient clinic about three times per week for check-ups.

For further information: http://www.kidneywales.com/childrens-kidney-centre/#sthash.8wSUlvlC.dpuf

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