Cardiff Befriending Training Course

We are holding a one-day Befreinding Training Course in Cardiff for our local supporters who would like to join the Paul Popham Befriending Service and become a trained Befriender.

The course is open to kidney patients or carers of kidney patients who are willing to give a few hours a month provide support, advice and information to other kidney patients and/or carers.

Our Befreinders give their time on a volunteer basis and share their experiences with other kidney patients carers?

The course will take place on Monday, 22nd October 2018 between 10 am and 4 pm at the Nephrology and Transplant Directorate at the University Hospital of Wales on

The course will provide the training required to Befriend kidney patients and/or carers of kidney patients who need support, advice and information.  Full details here.

For further information or to book onto the course, either call or email us as follows:

Tel: 0800 038 8989 email: support@paulpophamfund.co.uk

The Choice to Donate

Charities and medical professionals are urging organ donors to speak to their families about the choice to donate to prevent relatives overriding their decision.

In Wales alone, figures show 21 families denied consent for organs to be given or did not support deemed consent in 2016/17 even though adults in Wales are regarded as agreeing to donate unless they opt out.

The Welsh Government said this could have resulted in 65 extra transplants, with three organs retrieved per donor on average last year.

Hospitals, charities and supporters of organ donation are highlighting that words save lives and the more people talking about organ donation with their families the better.  It’s important because many people don’t realise that family support is needed for organ donations to go ahead.

Kidney Donation

When it comes to kidney donation, aside from people who have opted to be donors on their death, there are many myths about how safe it is to donate a kidney and remain alive and healthy.  To help dispel these myths, the Paul Popham Renal Fund Wales, would like to share information* on kidney donation and how safe it is to donate a kidney to a loved one.

One of the most frequently asked questions is, “How safe is it to live with one kidney?” Though the need for kidney donors is high, donation is not acceptable if the donor is put at excessive risk of harm. So, every effort is made to minimise the chance of problems.

Donation is not risk-free. Your medical team will discuss the main risks with you as you go through the process and you will need to consider these carefully when deciding whether you wish to be a donor.

There are two main aspects to the question of how safe donation is for the donor: the operation itself and living with one kidney.

The operation

Donating a kidney requires a major operation under general anaesthetic. No operation is risk-free, so it is important to make sure that you are fit and well beforehand so that the risks to you are as low as possible.  There are a number of other risks linked with the operation itself, such as infection, bleeding and pain. As with any surgery, there can be other less common and unexpected complications.

One of the benefits of being a kidney donor is that you go into the operation in good health, and the transplant team will know a great deal about you from the assessment that you have been through. This helps them to anticipate any problems, discuss them with you and to deal with them better should they happen.

Every transplant centre in the UK performs transplantation of kidneys from living donors, and one in every three kidney transplants is from a living donor. Around 1000 such operations are performed in the UK each year. This means that the donor operation is much more common than it used to be and surgeons are very experienced in removing kidneys safely. (Source: Give a Kidney One’s Enough)

Living with one kidney

It is generally considered very safe to live with one kidney and your clinical teams will outline the main risks to you, which include the most common and the most severe risks, as well as the main risks for your own specific circumstances.

For more details on the latest professional guidelines visit the British Transplantation Society website.

Some studies have indicated that there is a slightly higher chance of a small increase in your blood pressure or the amount of protein in your urine as a result of having one kidney. However, these are checked at annual follow-up and, if found, can be treated.

The overall risk of developing significant disease in your remaining kidney after donation is low, occurring in fewer than one in 200 (0.5%) donors, and it is much less in kidney donors than it is in the general (unscreened) population (because kidney donors are, of course, pre-screened to ensure they are healthy). Compared to the general public, most kidney donors have equivalent (or better) survival, excellent quality of life, and no increase in end-stage renal disease (ESRD – kidney disease).

*Please note, this information does not cover detailed medical questions; it is designed to give you general information about donating a kidney based on the advice of medical professionals and currently accepted guidance in the UK, from the research that is available to them. Your healthcare team will discuss risk with you in more detail and on an individual basis, particularly if there are certain concerns about you or your recipient because of your lifestyle, medical history or demographic, as risk must be considered on an individual basis based upon your individual circumstances.

 

Cardiff Quiz Night

We are delighted to announce a Quiz Night in aid of the Paul Popham Fund, Renal Support Wales, that is being hosted by one of our supporters.

The quiz night will be taking place in the Scouts Hall on Allensbank Crescent, Cardiff (CF14 3PR) on Saturday 10th November 2018 from 6.30pm to 10.00pm.

Tickets are £5 per person and includes one drink from the bar.

Proceeds from the ticket sales, bar takings and raffle on the night will be donated to the Paul Popham Fund and ring fenced to support the development of the Befriending Service throughout Wales, in particular Cardiff.

Befriending Training Course

We are holding a one-day Befreinding Training Course for our supporters who would like to join the Paul Popham Befriending Service and become a trained Befriender.

The course is open to kidney patients or carers of kidney patients who are willing to give a few hours a month provide support, advice and information to other kidney patients and/or carers.

Our Befreinders give their time on a volunteer basis and share their experiences with other kidney patients carers?

The course will take place on Wednesday 26th September 2018 at the Education Centre in Morriston Hospital between 10am and 4pm.

The course will provide the training required to Befriend kidney patients and/or varers of kidney patients who need support, advice and information.

For full details click here. 

For further information or to book onto the course, either call or email us as follows:

Tel: 0800 038 8989    email: support@paulpophamfund.co.uk

 

Cash for Kids Comes up Trumps for Kidney Disease Charity

The Wave & Swansea Sound Cash for Kids auction, which runs every December to raise funds for local charities, has come up trumps once again.

Radio presenters Claire Scott and Steve Dewitt have presented the Paul Popham Fund Renal Support Wales with a cheque for £1,000.

This donation will be used by the charity to fund a trip for paediatric renal patients and their families to watch the touring production of the musical, Matilda, at the Wales Millennium Centre this Christmas and the local Swansea production of Cinderella at the Grand Theatre.

Commenting on the generous donation, Joanne Popham from the fund said, “The Wave & Swansea Sound Cash for Kids appeal raises thousands of £’s for local charities every year and we are delighted to be a recipient this time round.  Trips to the theatre are normally few and far between for young kidney patients and I know there will be a huge number of very happy children and their families after the shows this December.”

Pictured receiving the cheque from Claire and Steve at the radio station are Hayley Evans (Charity Administrator) and Nicola Matthews (trustee) from the Paul Popham Fund.

Swansea Bay Summer 5k Series and Fun Run Results

That’ s a wrap!

What a fantastic 2nd Swansea Bay 5k Summer Series and Fun Run that was! The Paul Popham Running Club, 360 Beach & Watersports and the Paul Popham Fund, Renal Support Wales would like to thank all those who participated, sponsors, volunteered and worked the event for making the 2nd year for the Swansea bay Summer 5k Series a success!

 

The sun was shinning, participants smiling and volunteers cheering it could not fail to produce such a wonderful atmosphere for 2018 series and fun run. We were delighted to see children as young as 4 taking part in the 1k and 2.5k and an increase in participants from 2017 with nearly 100 children taking part over the 3 events!

After the Fun Run came the 5k race which saw entrants take part from across the waters! Over 600 participants took part to chase the title of 1st, 2nd and 3rd place in the Juniors, Female and Male categories!

We are delighted to the overall series winners:

HUGE MASSIVE Thanks to all participants, volunteers from PPRC, videographer – Paul and Carol Jenning, photographer – Jo Ashburner & Zoe Marshall, 360 staff and our sponsors Persimmon Homes, Active Leisure, Verdis, Gemeg, Home from Home & Falck as well as ND John Wines providing the wine for the whole series. We reached our target of raising over £3000 for the Paul Popham Fund to support kidney patients to compete in the transplant games which takes place on Thursday 2nd August to Sunday 6th August 2018 in Birmingham – so thank you one and all.

For the full set of results check the website link here:

To view the video of the series click here:

We will look forward to seeing you all back in 2019! Look out for details towards the end of 2018! Diolch One & All!

 

Paul Popham Fund Inaugural Golf Day

Kim Loosemore with fund manager Joanne Popham

The inaugural Paul Popham Fund Golf Day took place on a sunny Friday in July with a great atmosphere and lots of banter between the 30 plus teams ,all competing for the annual trophy!

The Paul Popham Fund Team tried their best to earn the bragging rights for their first appearance at the tournament as did all the teams that have played every year for the last 6 years but there was only one winner!

Winning team with Kim

Kim Loosemore who organises the event every year and plays in the tournament himself, lucked out when his old suppliers, FAI, took the 1st place in the event.

 

Kim works hard to organise the event, bringing together local and national businesses to take part in this charity golf day. Calling on old and new friends to enjoy the day while giving back to charity. As a result, a massive £4815 was raised for the Paul Popham Fund which will go towards funding children and youths with kidney failure to enjoy an activity weekend.

Kim, the charity and all teams are looking forward to the 2019 tournament look out for the date on the website www.paulpopahmfund.co.uk

Family Team Building Activity Day

Last Sunday we held a family team building activity day in Cardiff which was open to paediatric renal patients and their families.

The event was designed to include a range of fun activities for all participants but most importantly the opportunity to meet with people going through similar experiences in order shares their challenges.

To encourage open and honest conversation as a stepping stone to mutual support, the guests were encouraged to talk about their first-hand experiences and how they were coping and feeling.

The event was funded from monies raised by the charities Swansea Half Marathon Team who raised over £3000 for the charity.

Says Joanne Popham, Manager at Paul Popham Renal Support Wales, “This is the first family team building day we have held for paediatric renal patients which included their families.   We have learned at first hand through the charity that it’s not just the young patients who need support outside of medical care but their parents and siblings too.

“The aim of our peer group sessions was to help everyone involved in the care of young renal patients to understand how we can extend our support to the wider family by evaluating the issues, concerns and feelings of these groups.  Through this approach, we are able to develop our services to ensure that we meet the needs of everyone involved.”

Following the success of this first event, the charity is planning to hold similar events for renal patients over the coming months.

 

Success for Our Athletes in the European Transplant Games

Funds raised through the 5k series of races which the Paul Popham Renal Fund Wales has launched in 2018 for the second year running have helped us to sponsor young athletes in the European Transplant Games.

The Games took place at the end of June in Cagliari and we were delighted to have been able to sponsor Tracey Baker, Sam Scothern and Lewis Evans.

The Games are open for all kidney, liver, heart, lung, pancreas, bonemarrow transplant recipients and dialysis patients.  This is a multi-sport event which includes volleyball, badminton, tennis, table tennis, cycling, petanque, swimming, darts, golf, virtual triathlon, mini-marathon and athletics. Athletes are divided into age groups (18–29, 30–39, 40–49, 50–59, 60–69, 70+)

Our young athletes had huge successes in the games:  Tracey won one gold medal three bronze medals in athletics; Sam won a silver for golf; Lewis won a gold in discus, a silver in shot and a bronze in javelin; and Keiran Heycock who also took part for the Welsh kidney patients team and has supported the charity in the past, won two gold medals, two silver and one bronze in swimming.

In addition to funding patients to participate in the European Games, in August we are also supporting a total of 15 patients in the British Transplant Games in Birmingham.

Paul Popham Fund Swansea Half Marathon Team Supports Family Day Out

For the 4th year running, 15 runners from the Paul Popham Fund Renal Support team will be entering the Swansea Half Marathon to raise funds for the charity.

In addition, to the charity team, a further 20 plus runners from the Paul Popham Running Club are entering the race with many of the members also raising funds for the fund; and a team of volunteers will also be acting as marshals on the day.

All monies raised by the runners will be used to fund a family day out this July for children and youths, their parents and siblings. This is a new initiative where families can enjoy a day out together and gain support and advice from other families going through a similar journey to them. The day will be supported by the Paul Popham Befriending Team and staff within the Renal Services.

Says Joanne Popham, fund manager, “This day out go a long way in helping to improve the self-esteem and confidence in these young patients by taking part in outdoor activities and giving the chance to speak to other young people going through the same thing.”

Anyone who wants to make a donation to the fund to support this or any other event, please visit the donate us page on our website http://paulpophamfund.co.uk/support-us/donate/