Hugo and Jude (and dad) Pagett ‘Brave the Shave’ videos

Happy birthday (and shave-day) Hugo and Jude Pagett! After growing their hair for a year, the boys finally ‘braved the shave’ on their birthday Friday 10th July, raising a substantial amount of money for the Paul Popham Fund in the process. A big thank you to the Pagett family!

Hugo and Jude are identical twin boys, except for one difference: Hugo was born with Chronic Renal Failure and is awaiting transplantation.

Hugo is due to receive a new kidney, provided by his dad, who also pledged to shave his hair off if the total raised reached £2000, which it did, making the event a three-person shave!

A year on from Hugo and Jude’s initial decision to grow their hair, the time finally came to remove their extensive locks. Click on the videos below to see the transformations.

You can still donate, the link to their fundraiser is –

https://localgiving.org/fundraising/twinbravetheshavepagetts/

Let us know how COVID-19 is affecting your life

Kidney Care UK, Kidney Wales and the Paul Popham Fund are working hard to support kidney patients in Wales through the coronavirus pandemic.

We’d like to understand how COVID-19 is affecting your life to make sure we’re supporting you as best we can and raising the most important concerns with Government and policy makers.

Please let us know by completing the survey here by the 27th July: https://surveymonkey.co.uk/r/N7Y7VY8

Feeling anxious about going out? Coronavirus advice for renal patients

As the move towards relaxing the UK wide lockdown continues, you may be starting to think about getting out and about yourself. If you have been shielding for several weeks, it’s not unusual to have feelings of anxiety about the prospect of going out again. This may feel unpleasant, but there are some things you can do to help.

The Renal Psychology & Social Work Team, based in University Hospital Wales in Cardiff, has put together a video and downloadable PDF with tips and information to help you deal with the anxiety associated with taking your first steps outside again, as well as other COVID-19 related issues. You can watch the first video in the series by clicking on play below.

To download the helpful tips for dealing with anxiety PDF, click here.

 


Kidney Patient Newsletter – Covid-19 Update – ISSUE 4

The fourth edition of our Newsletter – Covid-19 Update – is now ready to view. It has been compiled by Kidney Care UK, Kidney Wales, Paul Popham Fund, the Welsh Clinical Renal Network – which oversees services for adult kidney patients in Wales, and the Wales Kidney Research Unit – an All-Wales strategy for the study of diagnosis, prevention, treatment and social context of kidney disease.
In this issue, we share information on benefits you may be able to claim, give the latest information on shielding, and talk about some of the amazing fundraising that has been done during lockdown. We value your opinion and would welcome your feedback on the content. What you would like to see in the future kidney patient newsletters?

To download issue 4 click here

Paul Popham Fund bring afternoon tea to Morriston Hospital Renal Unit

We’re proud to say that we, the Paul Popham Fund, Renal Support Wales, delivered 320 afternoon tea boxes to Morriston Hospital Renal Unit, to lift the spirits of patients and staff on Friday 3 July 2020 and Saturday 4 July 2020.

While Wales is slowly coming out of lockdown, the last few months have not been easy for the staff and patients at Morriston Hospital Renal Unit. People with kidney disease are classed as extremely vulnerable to serious complications caused by COVID-19 and have been asked to shield until the 16th August 2020. However, many of these patients require life-saving dialysis treatment and must travel to dialysis units three times a week. This requirement has understandably caused many vulnerable dialysis patients’ great anxiety. Considering this, The Paul Popham Fund wanted to provide patients with a tasty treat that they can enjoy whilst they receive their treatment, as well as providing a thank you gift to the wonderful dialysis teams that care for them.

This gesture was made possible by a generous fundraiser by transplant recipient and Paul Popham Fund Peer Mentor, Geraint John, who wanted to show support for the unit and its staff. He completed a sponsored walk of 50,000 steps around his back garden in late April, raising a total of £1,900 in the process.

Jo Popham, CEO of the Paul Popham Fund, explained:

“Geraint contacted us, explained what he wanted to do, and asked if he could ring-fence the money to support the renal unit in Morriston. We obviously said ‘yes’ and contacted the unit to discuss what they would like to do with the funds. Meryl Webb-Jones, Renal Matron, and Melanie Jones, Senior Sister, said that afternoon tea would be a welcome delight during this difficult time and would lift spirits for the staff and renal team.

“Not long after Geraint completed his long walk, Andrew Long, Head of Renal Technical Services, contacted the Paul Popham Fund to see if we could purchase lamps for their home dialysis patients. The bright light and magnifying mirror the lamps provide, are for renal patients who dialyse at home to see more clearly where to put the needle, allowing them to dialyse with ease. We spoke to Geraint to see if he was happy for some of the money to go to this too and he was delighted.”

Geraint has been a volunteer Peer Mentor for the charity since 2016, providing advice, guidance and an empathetic ear to people with kidney disease needing support. His personal experience of kidney transplantation gives him an understanding of the issues other transplant patients and their loved ones might be going through.

A highly energetic volunteer, Geraint also set-up the Paul Popham Fund’s walking for health group in 2019 and is quizmaster on the charity’s fortnightly virtual quiz, which has raised a further £500 during the pandemic. When he got the news that he had to shield for 12 weeks he decided to do something positive to help people like him and the staff that care for them.

The delivery of the afternoon teas was also undertaken by the charity’s generous volunteers. During the pandemic, the Paul Popham Fund have recruited several additional volunteers to support people with kidney disease get their essential shopping. This volunteer team jumped at the chance to deliver the afternoon tea boxes to the unit.

Lynne Orton, chair of trustees, Paul Popham Fund, said:

“The unit managers, Melanie and Debbie, informed us how many were dialysing and on what shifts, and we organised for the boxes to be delivered accordingly, so no one missed out. We cannot thank Geraint, Louise, James, Ron, Derek, Nikki & Nicole enough for the support they have shown the charity and people with kidney disease in Wales.”

Like many charities across the UK, the Paul Popham Fund has had to adapt its services during this time to support their beneficiaries, and the team of volunteers have adapted with the charity to ensure all people with kidney disease in Wales lead a better quality of life during this time.

NEW – KIDS Newsletter specifically for families of children with kidney disease

Click on the link below to download the first edition of this Newsletter for Families of Children with Kidney Disease, compiled by the Paul Popham Fund, Renal Support Wales, the Children Kidney Centre and parents and carers to provide a useful resource during the Covid-19 Pandemic.
We hope that you find this useful and would appreciate your feedback on the content, along with suggestions for further editions. Please direct your feedback and enquiries to: The Paul Popham Fund 01792 654182 or email enquiries@paulpophamfund.co.uk

Click here to download the full newsletter

Befriending service changes its name to Peer Support Service

Service Name Change

The Paul Popham Fund, Renal Support Wales, relaunched its Befriending Service on the 26th June 2016 in conjunction with the Renal Services at Morriston Hospital. Since that day, the service has grown from strength to strength, offering people with kidney disease a support service from people like them – people who have been through a similar journey.

Prior to this, it was facilitated by the Psychology Department, University Hospital Wales Cardiff and supported by the WKPA.

Over the last four years the service has continued to develop, providing much needed support to people with kidney disease. The support services have included: face to face meetings with Befrienders who chat through their concerns; the facilitation of various support groups, named ‘Kidney Café’s’; and the provision of a counselling service for those who require more emotional support due to anxiety or depression.

During the COVID-19 Pandemic the charity has developed to offer the Befriending Service over the phone. The charity’s Befrienders – all people with kidney disease themselves or the carers and family members of people with kidney disease – have been manning the charity’s Careline Monday to Sunday 9am to 6pm, so that patients and their families can call and speak to someone who understands. The charities Kidney Café’s have been managed on-line by holding virtual support meetings, so that the charities are still providing much needed support during this time. This has enabled the service to be offered to all people with kidney disease in Wales, including North Wales, where previously we were unable to spread the service that far.

July 2019

In July 2019 the Charity held a meeting to review the name of the service. The question we asked our current Befriending Team was:

Does the term Befriending accurately describe the service? We provided them with the following descriptions:

 What is Befriending?

Befriending offers supportive, reliable relationships through volunteer Befrienders to people who would otherwise be socially isolated. Around the UK, there are befriending projects which organise effective support for children and young people, families, people with mental ill-health, people with learning disabilities and older people, amongst many others.

The results of befriending can be very significant. Befriending often provides people with a new direction in life, opens up a range of activities and leads to increased self-esteem and self-confidence. Befriending can also reduce the burden on other services which people may use inappropriately as they seek social contact.

Peer-to-Peer Support, which is described as:

Peer support is distinct from other forms of social support in that the source of support is a peer, a person who is similar in fundamental ways to the recipient of the support; their relationship is one of equality. A peer is in a position to offer support by virtue of relevant experience: he or she has “been there, done that” and can relate to others who are now in a similar situation. Trained peer support workers such as peer support specialists and peer counsellors receive special training and are required to obtain continuing education Units, like clinical staff.

From the above definitions, it was clear that the Befriending Service actually provides Peer Support and that Befriending actually means being a friend to someone who needs support not necessarily someone who has been through the same experience as them.

The service has been renamed the Paul Popham Fund Peer Support Services four years after the date it was relaunched on the 26th June 2020 and our Befrienders will be called Peer Mentors, offering the service throughout Wales on a national basis.

For further information please call 0333 2001 285

If you need support, please call: 0800 038 89 89

Next Parents and Carers Kidney Café will be joined by Dr Shivaram Hegde

PARENTS AND CARERS KIDNEY CAFÉ

Thursday 2nd July 2020 – 11.30am to 1.00pm

We are thrilled to announce that Dr Shivaram Hegde will be joining the Parents and Carers Kidney Café on Thursday 2nd July as guest speaker and will be available to answer your questions.

The Kidney Café is specifically for all parents & carers of children with kidney disease. During the pandemic the group meets virtually, to receive a link for the meeting please contact the Paul Popham Fund on 0333 2001 285 or email: support@paulpophamfund.co.uk. This is a great opportunity to meet with other parents & carers to share and discuss experiences and gain information, advice and support from each other.

Also joining the meeting is Llinos Griffiths, Clinical Psychologist.

The meeting will start at 11.30am and end at 1.00pm.

Please send questions for Dr Shivram Hegde in advance to support@paulpophamfund.co.uk by Monday 29th June.

https://business.facebook.com/events/273994250345800/

Hugo and Jude Pagett’s ‘Brave the Shave’ fundraiser for the Paul Popham Fund

Hugo and Jude Pagett are identical twin boys, except for one difference: Hugo was born with Chronic Renal Failure and is awaiting transplantation. In the not too distant future, Hugo will receive a new kidney, provided by his Dad.

A year ago, Hugo and Jude wanted to grow their hair, so they came up with a cunning plan that if they were allowed to grow it, they would shave it off in a years’ time and raise money for charity.

A year on, the time has finally come to remove their extensive locks, and the family have organised a ‘Brave the Shave’ fundraiser to raise money for us – the Paul Popham Fund, Renal Support Wales.

Even though the event will be a smaller affair than planned, due to the ongoing social distancing restrictions, we are all excited that the day has finally arrived!

The link to their fundraiser is –

https://localgiving.org/fundraising/twinbravetheshavepagetts/

The total is already above £1100 which is fantastic! But every penny will count, so please donate generously.

ANNOUNCEMENT: Name Change of the Befriending Service

The Paul Popham Fund, Renal Support Wales has been facilitating the Befriending Service since June 2016, prior to this it was facilitated by the Psychology Department, University Hospital Wales Cardiff and supported by the WKPA.

 July 2019

In July 2019 we held a meeting to review the name of the service. The question we asked our current Befriending Team was:

Does the term Befriending accurately describe the service?

We provided them with the following descriptions:

 What is Befriending?

Befriending offers supportive, reliable relationships through volunteer befrienders to people who would otherwise be socially isolated. Around the UK, there are befriending projects which organise effective support for children and young people, families, people with mental ill-health, people with learning disabilities and older people, amongst many others.

The results of befriending can be very significant. Befriending often provides people with a new direction in life, opens up a range of activities and leads to increased self-esteem and self-confidence. Befriending can also reduce the burden on other services which people may use inappropriately as they seek social contact.

Peer-to-Peer Support, which is described as:

Peer support is distinct from other forms of social support in that the source of support is a peer, a person who is similar in fundamental ways to the recipient of the support; their relationship is one of equality. A peer is in a position to offer support by virtue of relevant experience: he or she has “been there, done that” and can relate to others who are now in a similar situation. Trained peer support workers such as peer support specialists and peer counsellors receive special training and are required to obtain continuing education Units, like clinical staff.

From the above definitions it was clear that the Befriending Service actual provides Peer Support and that Befriending actually means being a friend to someone who needs support not necessarily someone who has been through the same experience as them.

The service will be renamed the Paul Popham Fund Peer Support Services. The volunteers will be called Peer Mentors.

For further information please contact the Paul Popham Fund, Renal Support Wales.