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Peer Support Services

The Paul Popham Peer Support Service is run by people with kidney failure for people with kidney failure.

What is Peer Support?

Peer support refers to support from a person who has knowledge from their own experiences with a condition. Within the context of kidney disease, peer support is support that typically comes from a person with kidney disease or a person affected by kidney disease (e.g. immediate family member or caregiver).

The Paul Popham Peer support service links people living with kidney disease, to share knowledge and experiences – that health workers will not have.

Our Peer Support Services provides kidney patients with a hub of information, advice and support It complements and enhances other health care services by creating the emotional, social and practical assistance necessary for managing the disease and staying healthy.

Peer Support can be provided, over the phone, face to face, via messaging, through group meetings called Kidney Café.s through on-line support groups, unit visits and our walking group.

The Paul Popham Peer Support Service provides:

  • Peer Mentoring
  • Kidney Cafes
  • On-line Support Groups
  • Care Line
  • Walking for Health

The Paul Popham Peer support service can:

Assistance in daily management
Peer mentors use their own experiences with treatment options, diet, physical activity and management of their treatment in helping people figure out how to manage kidney disease in their daily lives. They can also help in identifying key resources, such as where to buy healthy foods or pleasant and convenient locations for exercise.

Social and emotional support
Through empathetic listening and encouragement, peer mentors are an integral part of helping patients to cope with social or emotional barriers and to stay motivated to reach their goals.

Linkages to clinical care  and community resources
Peer mentors can help bridge the gap between patients and health professionals and encourage individuals to seek out clinical and community resources when it is appropriate.

Ongoing support, extended over time
Peer mentors successfully keep patients engaged by providing proactive, flexible, and continual long-term follow-up.

If you would like to talk to a Peer Mentor

Peer Mentors

Our Peer Mentors provide information, advice and emotional support to kidney patients and their families throughout the whole of Wales.

All our Peer Mentors have experienced kidney disease, either as a patient of as a carer of a family member.

We have 24 Peer Mentors, of varying ages and experiences, based throughout Wales.

All Peer Mentors have undertaken specialist training to become a Peer Mentor and are supported by a Clinical Psychologist and the charity’s management team.

If you’d like to chat to a Peer Mentor, or would like support with any issue, please contact 0800 038 8989 or support@paulpophamfund.co.uk

Careline

Careline 0800 038 8989

Email support@paulpophamfund.co.uk

Our Kidney Careline is a telephone service where people with kidney disease, their family and friends can call and talk to someone who understands their circumstances, who can answer basic questions, find out answers to specific questions, provide reassurance, signpost to local services and offer support.

This service operates between 9:00am to 5:00pm weekdays and 10:00am to 2:00pm on Saturdays, manned by the charity’s trained Volunteer Peer Mentor Team, who are kidney patients, carers or family members themselves. They have first-hand knowledge of what you are going through and can offer advice, information, support, or even simply a friendly voice to chat to. Call the above number and chat to someone who understands.

If you would like to arrange to talk to a Peer Mentor who has been through a similar journey as you, or would like to talk to someone outside 9:00am to 5:00pm Monday to Friday or if you would like to receive a regular telephone call from us, then call 0800 038 8989 or email support@paulpophamfund.co.uk – please ensure you include the following information in your email. This will help us deal with your request more efficiently.

  • Name
  • Address
  • Telephone number
  • Please let us know if you’re are a kidney patient, carer or family member
  • Nature of the call: Talk to someone who has been through a similar journey/arrange a call outside the Careline hours/arrange a regular call
  • Password – our staff member will say your chosen password at the start of every call. This is to give you peace of mind so you know you’re speaking to a Paul Popham Fund Peer Mentor.

Careline Rota – January 2021

DAY TIME STAFF
 MONDAY 9:00am – 5:00pm

Pat Hill – Carer

Experience of PD

TUESDAY 9:00am – 5:00pm Roger Bambridge – Patient on haemodialysis. Experience of haemodialysis & diabetes.
WEDNESDAY 9:00am – 5:00pm Joe Townsend –  Young adult with a young family. Transplant patient. Experience of PD, Home Nocturnal dialysis & transplant. Competed in Transplant Games.
 THURSDAY 9:00am – 5:00pm Geraint John – Transplant patient. Experience of PD & transplant. Walking Group Walk Leader.
FRIDAY 9:00am – 5:00pm Gareth Jenkins – Young adult with a young family. Transplant patient. Experience of hemodialysis & live donation.
 SATURDAY 10:00am-2:00pm Rosie Evans– Young adult. Transplant patient. Experience of Haemodialysis & transplant (both live and cadaver).
 SUNDAY Closed

Closed – 0800 038 8989

Kidney Cafe

Our Kidney Café Support Groups are normally run from various locations where like-minded people with kidney disease or a parent or carer of a family member who has kidney disease can meet others to gain support. Each Kidney Café is facilitated by a Peer Mentor and most are also facilitated by a member of the Clinical Psychology Team. Each kidney café is unique but has a general structure as follows:

  • A theme requested by the group per session
  • An informal discussion
  • A guest speaker related to the theme

The kidney Cafes have been provided on-line during the Corvid-19 Pandemic. We have a number of Kidney Cafés listed below that can be accessed via our Facebook page or website.

Home Therapies Kidney Caféhttps://www.facebook.com/groups/hometherapieskidneycafe/

This is a Support group for patients undergoing any type of home dialysis therapy. During this unprecedented time, the group can be accessed on-line. To join the group and gain support from your peers type the address into your internet browser, or go to Facebook, search ‘home therapies kidney café’ and ask to join the group.

Post Transplant Kidney Café – https://www.facebook.com/groups/SouthWalesKidneyTransplantCafe/

Support group for transplant patients.

(This is named ‘South Wales Transplant Café’ due to the face-to-face meetings taking place in South Wales, but North Wales patients are welcome to join the group and contribute).

During this unprecedented time, the group can be accessed on-line. To join the group and gain support from your peers type the address into your internet browser, or go to Facebook, search ‘South Wales Kidney Transplant Cafe and ask to join the group.

Transplant Café dates – 4th Weds of the month, bi-monthly, all 11:30am-1:00pm – 27th Jan 2021, 24th Mar 2021, 26th May 2021 and 28th Jul 2021

 

Kidney Café Parent’s & Carer’s Group https://www.facebook.com/groups/kidneycafeparentsandcarers/

Support group for parents and carers of children with kidney disease. Currently, the group can be accessed on-line. To join the group and gain support from your peers type the address into your internet browser, or go to Facebook, search ‘kidney café parents and carers’ and ask to join the group.

Parents & Carers Kidney Café dates – Normally 3rd Thurs of every month although this is currently under review. The next date available date is Thursday 21st Jan 2021, 11:30am-1:00pm.

 

Llynfi Valley Kidney Café – https://www.facebook.com/groups/llynfivalleykidneycafe/

Support group for all kidney patients living in the Llynfi Valley area. During the pandemic, the group can be accessed on-line. To join the group and gain support from your peers type the address into your internet browser, or go to Facebook, search ‘Llynfi Valley Kidney Café’ and ask to join the group.

For further information on any of the above or anything else please call the charity mainline 01792 654182 or email support@paulpophamfund.co.uk

To find a Kidney Café group meeting go to our Events page.

Online Support Groups

Our online support groups are linked to our Kidney Cafe support groups.

No matter what you’re going through, you don’t have to face it alone. Our on-line Communities allsupport each other and you can make meaningful connections when they matter most. All our groups are facilitated by a Peer mentor, member of staff and a member from the clinical psychology team.

By joining the group you will be agreeing to our Group Boundaries, full details available here:

You will have access to the group meetings and can choose whether to join them or not. Our online groups are:

Home Therapies Kidney Café –

https://www.facebook.com/groups/hometherapieskidneycafe/

Transplant Café –

https://www.facebook.com/groups/SouthWalesKidneyTransplantCafe/

Kidney Café Parent’s & Carer’s Group – 

https://www.facebook.com/groups/kidneycafeparentsandcarers/

Llynfi Valley Kidney Café – 

https://www.facebook.com/groups/llynfivalleykidneycafe/

Walking for Health –

https://www.facebook.com/groups/ppfwalkforhealth/

Walking For Health

Unfortunately, over the past few months, we’ve encountered many disruptions to our regular monthly Walk for Health group due to COVID-19. To ensure the safety of all walkers and walk leaders, we have postponed our organised walks until further notice.

However, on Sunday 11th October we launched our new Virtual Walking Group Challenge. This ‘socially-distanced’, ‘local-lockdown friendly’ walking group ensures that walkers can continue to benefit from regular walking, whilst keeping safe and adhering to the current guidelines.

Group details – Walkers can participate individually or in household groups, to contribute to a group goal.

As a group, we will virtually ‘climb’ various peaks throughout Wales and the U.K. Each virtual walker will be sent a PPF ‘Wally’ hat, and will earn a badge for every group goal achieved. Entry fee will be £5 per person, which will cover the costs of the hats and badges.

How it would work – Each time a group member completes a walk, send your Walk Leader an update of the distance covered (kms or miles), or duration that you’ve walked for (minutes or hours). Your contribution to the group climb goal will be calculated using the following ratio – 20 mins will be equal to 1 mile walked, (e.g. 40 mins = 2 miles etc). For each mile (or 1.6km) the group cover, it will add 2 meters of elevation towards the group climb. E.g. if the group walk 6 miles in a week, the total elevation gained would be 12 meters.

Walkers’ contributions will be added anonymously to a database to keep track of the group progress. However, this will not be for competition purposes – however far you walk (or climb), your contribution to this group effort will be treated equally.

We will begin with the below-named 10 “peaks”, however, eventually we could summit Ben Nevis, or even Everest!

  • Tonna RFC – 60m
  • Glynneath Golf Club – 140m
  • Cefn Morfydd (Above Tonna) – 300m
  • Craig y Llyn – (Rhigos Mountain) – 600m
  • Slieve Donard (Northern Ireland’s highest peak) – 850m
  • Pen y Fan – 886m
  • Cadair Idris – 893m
  • Scafell Pike – 978m
  • Snowdon – 1,085m
  • Ben Nevis – 1,345m

Entry fees can be paid via Local Giving, PayPal or bank transfer. Please remember to add your name to the payment to enable us to link the payment to your entry. We hope that these arrangements will enable the group to continue walking, whilst ensuring that every group member is kept safe. If you’d like any further information, please contact Walk Leader Geraint on 07774 619473, or call the Paul Popham Fund on 0800 038 8989 or email support@paulpophamfund.co.uk

To join the group, please complete and return the Registration Form below:

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